Fragile X Syndrome Awareness

During July there was a national commitment to boosting Fragile X Syndrome awareness, orange ribbons and posters appeared all over the nation and social media was flooded with our collective efforts. The outcomes included media coverage, politicians being briefed, health professionals being updated and families participating in many and varied events. Importantly funds were raised. The process serves as a reminder to get behind small not for profit organisations who’s function is to support and advocate for individuals and families all with virtually non-existent funding to do so. Memberships enable their services to continue.

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